Adjusting Life To Illness Or Illness To Life? Reflections On Children’s Competences In The Neoliberal Era

One of the aspects that characterises neoliberal societies is the increasing attribution of individual responsibility. Citizens are required to commit themselves to adopting ‘appropriate’ lifestyles and to self-managing their health. Individual responsibility translates into a set of knowledge and techniques of self-governance, through which individuals learn and are expected to act in an increasingly autonomous way in order to prevent or mitigate health risks. This fostering of self-governance and individual responsibility affects both children and adults; in accordance with it, adults are required to transmit a sort of model of “pedagogy of responsibility” (Neyrand and Mekboul, 2014), through which children learn to acquire self-management of their health. This scenario becomes complicated if we take into consideration the two usual and contrasting representations of childhood in western societies: children as active subjects, or children as vulnerable subjects. Our work explores these contrasting representations through the narrations of adults and children of their experiences of Type 1 Diabetes.